Central Sleep Apnea Resources
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CCHS Information
"The CCHS Family Network is a non-profit, tax-exempt organization registered in the United States. Our efforts focus primarily on education, inter-family and family-physician communication, and supporting and facilitating CCHS research."
Centre de Référence Français du Syndrome d'Ondine 
"Le site est réalisé par le Centre de Référence Français du Syndrome d'Ondine...pour les patients Ondine et leurs familles, pour les équipes soignantes et les autorités administratives, ainsi que pour le grand public."
Undine Syndrom Selbsthilfegruppe 
"Wir sind eine Gruppe betroffener Eltern von Kindern mit diesem seltenen Krankheitsbild. In unserer Selbsthilfegruppe sind deutschlandweit und aus unseren Nachbarländern Schweiz und Österreich, ca. 50 Mitglieder zwischen Null und 27 Jahren registriert."
Associazione Italiana per la Sindrome da Ipoventilazione Centrale Congenita 
"L’Associazione è stata fondata da familiari di bambini affetti da Sindrome da Ipoventilazione Centrale Congenita. Questa malattia (in inglese Congenital Central Hypoventilation Sindrome o C.C.H.S.) è più conosciuta in Europa con il nome di Sindrome di Ondine. Fa parte delle cosiddette ´malattie rare´ (colpisce circa 1 bambino su 200000 nati vivi). In Italia vivono almeno 30 tra bambini ed adolescenti affetti, e nel mondo si conoscono più di 300 casi."
General Information
"SleepDisordersGuide.com...is designed to be a valuable tool for patients and members of the public who are seeking dependable information related to sleep, sleep disorders, treatments and services. Although the processes of sleep and its workings in the body are quite complex, the goal of this site is to present accurate, scientific information in a concise manner that is easy to understand."
International Ventilator Users Network
"International Ventilator Users Network's mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking."
"The family & professional site for the special needs community."
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